Sunday, April 4, 2010

Unfortunate Turn

Our precious Husband, Father, Brother, Uncle and Friend passed away peacefully on Tuesday, April 6th at 11:00 pm. His obituary will run in the Thursday and Sunday paper and give the memorial details. Thank you.

http://www.legacy.com/obituaries/saltlaketribune/obituary.aspx?n=timothy-paine&pid=141592353


eBay Tribute to Tim: http://www.youtube.com/watch?v=RHtwToUsKOo&feature=youtube_gdata


Easter Sunday - April 4, 2010
It is with deep sadness we share the news that Tim's cancer finally made it's big move. An MRI scan last Wednesday confirmed that the tumors have spread throughout his brain.

As his family, we feeel very fortunate to have him here at home where we, along with the support and help of an amazing Hospice team, can care for him during this, his final stage.

Please know how very much we care about each of you and appreciate your love, support and prayers. At this time, however, we ask that you respect our privacy as we go through this very difficult time. Comments on the blog are most welcome.

THANK YOU AND GOD BLESS!

The Paine Family




LIVESTRONG TIM!

Thursday, March 11, 2010

Sweet Celebration

March 9, 2010
What a milestone! Two years ago on this day Tim had is first seizure while skiing at Alta with family and friends. His brain cancer diagnosis came soon afterwards and did nothing short of turning his life upside down. And not just any brain cancer, but Stage IV Glioblastoma Multiforme, which is the deadliest and most aggressive form of brain cancer (average life expectancy = 13 months). Not good odds. But for everyone one who knows Tim Paine, great things were expected regardless of this horrible roadblock. And he did not dissappoint. Rather, he battled and braved his way through many difficult, painful and life-changing storms! And on Tuesday... he proudly celebrated "2 years" with dear loved ones and avid supporters, who believed in him and cheered him on every step of the way.

We are truly grateful to all of you who have participated in Tim's journey and fight. He will agree it's been a team effort and something he could not have done alone. We so appreciate the love and support and the way that you strengthened and carried us through the most difficult of times! Enjoy the photos from his party and a big THANK YOU to all of you who came to celebrate with him. It was a very special moment.

LIVESTRONG!!!


































Tuesday, January 5, 2010

This Week

February 23, 2010
In a word... progress. That's what Tim is making, and this time it's forward! I think all of those years of training and conditioning his body for marathons and triathlons is paying off, because Tim Paine is still in the race!

This last week has brought some more good news. On Thursday, Tim officially "graduated" from home health care (see photo below). His Physical Therapist, Rob was happy (and a little sad) to send him back to outpatient rehab where he will continue to try and regain some strength and improve his function. It's definitely a slow process, but Tim is determined and ready. Especially after a surprise visit from Instructor Thomas (aka Boot Camp Jess) last weekend. He showed up and gave P.T. Paine some much needed inspiration and motivation. Thanks Jess! Now drop and give me 20!!


The other news we want to share is that Tim had his most recent MRI scans yesterday and the results were not terrible. The 4 tumors that had developed last October are still showing some progress in their "retreat", but there is an area of concern where a new tumor has begun. Our hope is that the Avastin, along with the many other treatments Tim is doing will quickly have the same positive effect on this one!

So for now, the fight goes on and he will continue working his way towards a healthy recovery. Please know how much we appreciate all of the love and support from everybody out there on "Team Paine". Not a day goes by that we don't feel that strength from each of you. We have been very blessed and would feel ungrateful if we didn't acknowledge and recognize God's hand in all of this.

LIVESTRONG!


February 8, 2010
Whoever said it's always darkest before the dawn was right. January was downright "black". But we are happy to report that February is turning out to be much brighter. Without going into all of the gory details, Tim's condition definitely got worse before it started getting better. Once home from the hospital, the real trouble started. His respiratory infection brought with it a number of problems including severe coughing, aching, congestion, wheezing and difficulty breathing... all of which made it impossible to sleep at night (or any other time for that matter). And if all of those things weren't bad enough, every time he would blow his nose it would start to bleed. And not just for a few minutes, we are talking for days and days! One of the side effects of the Avastin treatments are nosebleeds and then with his blood being thinned to treat the clot... let's just say our bedroom looked like a damn horror movie. It was not pretty and was not a good time and to be quite honest, was extremely scary for all of us. But in true Tim Paine fashion... he managed to pull through it and make it to the other side.

This last week has been filled with a lot of rest, whole-hearted physical therapy, trips to the barber shop and some wonderful and healing holistic treatments for both Tim AND Julie. Poor Julie took her own little trip to the hospital a few weeks ago. Come to find out, there is such a thing as sheer exhaustion. Either that or she was just sick and tired of her husband getting all of the attention. Whatever the case, we have been overwhelmed by the care from family, friends and neighbors and so appreciate all of the help and wonderful meals that have been brought in. Thanks especially to Julie's parents who have filled our refrigerator and cupboards and especially our hearts so many times now. We love you!

Our new favorite quote is by Willa Cather "Where there is great love, there are always miracles!" Tim is a true miracle and chooses every single day to defy the odds. He is simply amazing.

We are once again open to phone calls and visits... so please do not hesitate to call or come by. A phone call to make sure it's a good time would be best... but we would love to see you or hear from you. Thanks again for the love, support, prayers and strength!

LIVESTRONG!

Before his trip to see Bob the Barber...


After seeing Bob... sporting a nice goatee!

Most Recent News

January 19, 2010
Good news... thanks to Abby and Olivia breaking their daddy out of the hospital, Tim is back home! It was a huge relief when things finally shifted on Monday and he started showing some improvement. We have commented many times on how fortunate we are to live so close to the amazing caregivers, doctors and specialists at IMC. They have once again impressed and wow'd us with their skills, expertise and most of all... their human side.

The good news is that he is slowly getting better and he responded well to the method of blood thinning they decided on - which is a Lovenox shot in his belly twice a day. The bad news is that he will most likely have to be on these shots for a very long time and will have to be extremely careful not to fall or cut himself. The other bad news is that Julie (who is terrified of needles) is going to have to buck up and learn how to jam a needle into her husband's stomach. Yikes! You never know though, it could prove to be therapeutic for her!!

Next steps are first and foremost, a lot of rest for Timmy. Even though a hospital is supposed to be a place for rest, he didn't get much of it. He will also be working to clear up the infection in his lungs, improve his strength and function with home physical therapy and continue his Avastin treatments for the tumors.

Thanks once again to dear friends and family and the excellent care from his doctors and nurses, Tim has made it through another stage of this so-called marathon. We appreciate the care and kindness shown to us once again. Stay tuned for more updates as we go!

Above are the Paine Brothers, Freddie, Tim and Scott... watching skiing on Universal Sports in Tim's hospital room. Are they diehards or what!!


December 2009
After 21 months of having an MRI scan and then bracing for the "bad news"... Tim finally turned the tide. His scans came back showing that the tumors (4 of them to be exact) are somehow retreating! Wow... what a change from his previous 9 experiences.

Although this news is promising and encouraging, we remain cautious and a little guarded as he still has a long way to go. With each tumor, every surgery, the chemotherapy and radiation, and especially the steroid treatments, Tim's body has suffered. He is weak and low on energy and his real fight is just beginning. He will start rehab next week to try and regain some strength and become active again. But we all know Tim... and there is no one more dedicated, committed or disciplined. He will be back on his feet (and hopefully the slopes)
in no time.

Monday, January 4, 2010

The Good Stuff!!

Despite Tim's cancer diagnosis and how it really does turn your life upside down... we are learning some valuable lessons. First and foremost, life goes on! As much as we wanted to crawl back under the covers every day... we didn't, and here are a few of the highlights from our fabulous adventures over the last few years:

November 2009 Football Game
Thanks to one of Tim's best friends, Angelo... Tim and Julie were able to enjoy a fabulous weekend in Cincinnati and the chance to see their first ever NFL game - the Bengals vs. the Ravens. It just so happens that Angelo's sister (Peg) is married to Head Coach Marvin Lewis. The weekend was spent at the Lewis home with Angelo and Janet Papastamos, Jim and Jackie McDowell, Chris Bleau and girlfriend Ellen, and many other hard core Bengal's fans! From tailgating to eating ourselves silly in the suite, we had a wonderful time and best of all, the Bengals won!!

July 2008 Canada Van Trip
Tim and Julie spent 10 days on the road driving through Glacier National Park and British Columbia, Canada. We took Tim's 1990 Vanagon on the trip of a lifetime. We went to all of the places Tim usually visits during the wintertime on his annual ski trips and were able to see them in the beautiful summertime. Julie even experienced her first helicopter ride - which was breathtaking. We're not sure if "we" or the "van" had a better time though. Tim said at least 100 times that "This is the kind of trip these vans were made for!"
Can you hear it?

August 2008 & 2009 River Trips
What a fabulous Paine Family Tradition we have started. For the last 2 years we spent the first week of August floating down the Green River through Lodore Canyon. What better way to teach your kids about nature than living out in it for 4 days and nights. We weathered some amazing rapids, some intense storms, flying tents, chubby bunny, and using a bano! Oh, and our kids learned that they can live without their phones and electronic games!! Go figure.

November 2008 Wedding
During a wonderful trip to Hawaii over Thanksgiving, Tim and Julie planned a very simple and intimate wedding on the beach in Kailua. With Tim's brother Freddie, our children and a minister... we experienced one of the most beautiful ceremonies that joined our family together forever. It was a truly remarkable day that we still talk about and cherish.